PHOENIX RISING

 A Guide To Chronic Fatigue Syndrome

Bringing Opportunity to ME/CFS/FM Patients

The Phoenix Rises From the Ashes of Its Former Existence

PATIENT AND SUPPORT GROUP WEBSITES - Click here to find out about other informative chronic fatigue syndrome (ME/CFS) websites.

THE DOCTOR'S PAGES: 'VISIT' THE DOCTOR ON THE WEB  - Learn how prominent chronic fatigue syndrome (ME/CFS) doctor's approach ME/CFS.

CHAT GROUPS - Join a chat group to get the latest patient talk on CFS treatment and research.

• CFSExperimental@yahoogroups.com  (@1200 members)

NEWSLETTERS - newsletters with regular updates on various aspects of CFS are readily available on the net.

• The Phoenix Rising newsletter provides up to date summaries of the latest CFS research efforts as well as events, stories, interviews and more.

• Sign up at the 'World's Largest Fibromyalgia and Chronic Fatigue Syndrome Site" at Immunesupport and regularly get short but well written and understandable updates on CFS research and treatment.

• Be sure to sign up for Dr. Bell's newsletter 'The Lyndonville News'.  Besides treating CFS patients Bell has been an important advocate for many years. In his this  rather irregularly distributed newsletter he supplies information on CFS in an informal and engaging manner.   

BUY VIDEOS

• Get the videos from Dr. Cheney and others at CFIDS and FMS Support Group of Dallas Fort Worth

ENGAGE IN PATIENT ADVOCACY  - Patient advocacy is not difficult and it is necessary.  Given the poor funding of CFS  research only concerted patient efforts will ensure that the government provides funding necessary to overcome CFS.  The CAA provides ways each of us can influence the progress made towards understanding CFS. One way you can contribute to the understanding of CFS is to contribute your story to this website. 

JOIN A PATIENT ORGANIZATION

• Invest in your future; the CFIDs Association of America (CAA) is the largest patient advocacy and research organization in the U. S.

• The IACFS/ME (International Association of Chronic Fatigue Syndrome/ME) is our organization of ME/CFS professionals. They put on the biannual ME/CFS international conferences.

CLINICAL TRIALS

• Interested in joining a clinical trial?  Click here to view the current and opening clinical trials in the U.S. from the CAA's website.

GET TECHNICAL

• Check out the abstracts on the latest research on CFS from the scientific journals at PubMed

• Need some good reference material?  Check out the browse able medical textbooks at PubMed. 

SUGGESTIONS? Please contact me at Phoenixcfs@gmail.com