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CFIDS Association of America (CAA) - Our professional national advocacy and support group; lots of information, lots of activity; a new Scientific Director, the media campaign, the kNow More conferences, etc. - join them, donate to them and use their website.
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ImmuneSupport.com is the busiest chronic fatigue syndrome (ME/CFS) site on the web. Prohealth, a nutritional supplement company founded by ME/CFS sufferer Rich Carson, provides message boards, chat rooms, frequent talks by doctors, a newsletter and much more on ME/CFS.
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Co-Cure - a major hub for chronic fatigue syndrome (ME/CFS) information. There's always something new on Co-cure (Cooperate and Communicate for a Cure).
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MERUK (Myalgic Encephalitis Research United Kingdom) offers patient friendly synopses of recent research by this research group and others. What a boon it is when researchers take the time to explain difficult medical issues to patients. The researchers associated with MERGE are engaged in some of the most interesting research being done on CFS right now.
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The Dallas Fort Worth CFIDS site has been completely revamped recently. Besides being the central hub for information on Dr. Cheney it contains a wealth of other interesting information plus a forum.
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Fighting Fatigue is an active, beautifully put together website with easy to understand articles and lots of resources and links.
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Put together by someone with CFS and MCS for 15 years the Environmental Illness Resource has just what its name implies, lots of resources including products for sale that may be helpful CFS, MCS, fibromyalgia and other diseases.
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P.A.N.D.O.R.A. this Miami advocacy founded by Marly Silverman has quickly become one of the most active advocacy groups in the U.S. Among others it sponsored the highly successful 2007 P.A.N.D.O.R.A./ IACFS Patient Conference (click here and here). For a Phoenix Rising interview with it's founder click here.
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The New Jersey CFIDS Association sponsors conferences, has regular speakers, a doctor referral list, and information on how to diagnose and treat CFS. The originator of the Consensus CFS Treatment Manual now being used in other states, the NJCFA is hands down the most effective state CFS advocacy group in the United States.
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The Rocky Mountain CFIDS/FMS Association boasts an online newsletter, basic information on ME/CFS and, if you're near Denver, an active seminar series.
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The Wisconsin Chronic Fatigue Syndrome Association is one of the oldest extant CFS support groups. It offers a quarterly newsletter, discussion forum, phone support and more. Read an interview with WCFSA President Pat Fero.
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OFFER: the Organization for Fatigue and Fibromyalgia Education and Research is a dynamic Salt Lake City organization created by Dr. Lucinda Bateman. This slowly growing website offers an electronic newsletter and some basic information on ME/CFS.
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There is no more important issue for CFS patients than research funding. Craig Maupin of the CFIDS Report has done the research to help explain why the major medical research institutions in the U.S. have failed CFS patients so miserably and how they may begin to turn around.
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The ME/CFS (SA) from 'down under' in Australia has good patient friendly papers and lots of links to other sites.
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FM-CFS Canada leads a national coalition of nearly 100 FM/CFS support groups. It's bi-lingual website contains an enormous amount of information including complete support group lists, economic analyses, research information, a media center, a National Action Plan, a legal center, question and answer pages, patient stories and more!
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The Canadian websites are a great resource for information on the Myalgic Encephalopmyelitis (M.E)./Chronic Fatigue Syndrome debate. Dr. Byron Hyde, a Canadian physician has been involved in M.E. treatment/advocacy for many years. Check out his Nightingale Research Foundation site and the National ME/FM Action Network with its legal and medical research packages and the Ontario Myalgic Encephalomyelitis group.
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You can get more M.E. information at the ME ActionUK site and the M.E. Society of America.
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The Canberra Fibromyalgia and Chronic Fatigue Syndrome Pages is a beautifully put together site with lots of information, particularly on the Australian research scene, plus some really good stories.
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CPN.HELP charts provides support for CFS, MS and other patients who have Chlamydiae Pneumoniae infection. Diana's story on the Phoenix Rising website charts how one longtime CFS patient with CPN infection completely recovered. Lots of information put together in an attractive way.
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Read about one person's success (yes, success) story in Chronic Fatigue Syndrome 'A Success Story'. Vitamin D was critical to Frank's success. He lays it out in a detailed and responsible fashion. A fascinating story.
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If you, like many other CFS patients have stomach problems or irritable bowel syndrome, be sure to check out a very informative (and quite striking looking) site with regular updates called Irritable Bowel Syndrome and Treatment.
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Check out Angelfire, an excellent MCS site with much information and many links for those with this problem.
