Rik Carlson - Rik Carlson founded the first state Vermont CFS group, the Vermont CFIDS Association (VT CFIDS Association. In 2003, after six years of work he published a blunt, articulate, darkly humorous biography "We’re Not in Kansas Anymore" that chronicled his (fascinating) life before and after CFS. In 2006 the VT CFIDS Associations efforts culminated in the Vermont legislature’s passing a bill with the object of providing an ME/CFS Manual to every physician in the state. (October 2007)
Pat Fero - Pat Fero, the leader of one of the oldest, if not the oldest operating CFS Support/Advocacy groups in the U.S.; the Wisconsin Chronic Fatigue Syndrome Association (WCFSA). A longtime CFS patient Pat has engaged in support/advocacy work on either the local or national level for over 20 years. She was presented the PANDORA Female CFS Advocate of the Year at the 2007 IACFS Convention. (April 2007)
Dr. Ken Friedman- Dr. Ken Friedman is a researcher, advocate, author and father of a daughter with ME/CFS. From 2003 to 2006 he was a member of federal advisory committee on ME/CFS, the CFSAC.
Part One: the CFSAC and the Federal Response to ME/CFS. - Dr. Friedman's discusses his time on the CFSAC, the pros and cons of the federal governments efforts in the areas of research and education and the role the CFSAC plays in the ME/CFS community.
Dr. Leonard Jason -
Dr. Jason lead the Pediatric definition group, produced the first complete
economic costs estimate of ME/
Martha Kilcoyne - A CFS Patient Returns - Ten years after she came down with chronic fatigue syndrome (ME/CFS) and seven years after she recovered from it Martha Kilcoyne returned to tell her story in "Defeat Chronic Fatigue Syndrome: You Don't Have to Live With It." Martha talks about how she beat ME/CFS and the techniques she and her husband pioneered, many of which are becoming standard practice amongst forward thinking doctors.
Marly Silverman - In a few years Marly Silverman has created one of the most dynamic CFS support/advocacy organizations P.A.N.D.O.R.A. in the U.S. (Jan 2007)
Dr. Suzanne Vernon - A leader of the innovative CDC ME/CFS research team for 11 years, Dr. Vernon became the CFIDS Association of America's first Scientific Director in November, 2007.
Dorothy Wall - Dorothy Wall, an ME/CFS patient, is the author of the book "Encounters With the Invisible : Unseen Illness, Controversy, and Chronic Fatigue Syndrome" (Nov. 2006)
