Phoenix Rising

PHOENIX RISING

 A Guide To Chronic Fatigue Syndrome

Bringing Opportunity to ME/CFS/FM Patients

The Phoenix Rises From the Ashes of Its Former Existence

Cort Johnson

Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia Symptom Checklist

Dr. Katrina Berne, a clinical psychologist and author who specializes in ME/CFS & FM, has developed a comprehensive symptom checklist she advises her patients to complete & take to their doctors. This form should be updated every few months to document your symptoms and your progress. It’s especially helpful in the disability application process.

Please indicate on a scale of 1 to 10 the severity and frequency of each symptom, with 10 being the most severe and frequent. Use the past two months as a general guide. If you do not have the symptom, leave the space blank. (Thanks to Dr. Berne for providing this list.)

DATE:


____ Fatigue, worsened by physical exertion or stress

____ Activity level decreased to less than 50% of pre-illness activity level

____ Recurrent flu-like illness

____ Sore throat

____ Hoarseness

____ Tender or swollen lymph nodes (glands), especially in neck & underarms

____ Shortness of breath with little or no exertion

____ Frequent sighing

____ Tremor or trembling

____ Severe nasal allergies (new or worsened)

____ Cough

____ Night sweats

____ Low-grade fevers

____ Feeling cold often

____ Feeling hot often

____ Cold extremities (hands and feet)

____ Low body temperature (below 97.6)

____ Low blood pressure (below 110/70)

____ Heart palpitations

____ Dryness of eyes and/or mouth

____ Increased thirst

____ Symptoms worsened by temperature changes

____ Symptoms worsened by air travel

____ Symptoms worsened by stress

PAIN

____ Headache

____ Tender points or trigger points

____ Muscle pain

____ Muscle twitching

____ Muscle weakness

____ Severe weakness of an arm or leg

___ Full or partial paralysis of an arm or leg

____ Joint pain

____ TMJ syndrome

____ Chest pain

EYES AND VISION

____ Eye pain

____ Changes in visual acuity (frequent changes in ability to see well)

____ Difficulty with accommodation (switching focus from one thing to another)

____ Blind spots in vision


SENSITIVITIES

____ Sensitivities to medications (unable to tolerate a "normal" dosage)

____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes,
hair sprays)

____ Sensitivities to foods

____ Alcohol intolerance

____ Alteration of taste, smell, and/or hearing

UROGENITAL

____ Frequent urination

____ Painful urination or bladder pain

____ Prostate pain

____ Impotence

____ Endometriosis

____ Worsening of premenstrual syndrome (PMS)

____ Decreased libido (sex drive)

GASTROINTESTINAL

____ Stomach ache; abdominal cramps

____ Nausea

____ Vomiting

____ Esophageal reflux (heartburn)

____ Frequent diarrhea

____ Frequent constipation

____ Bloating; intestinal gas

____ Decreased appetite

____ Increased appetite

____ Food cravings

____ Weight gain (_____ lbs)

____ Weight loss (_____ lbs)

GENERAL NEUROLOGICAL

____ Lightheadedness; feeling"spaced out”

____ Inability to think clearly (“brain fog”)

____ Seizures

____ Seizure-like episodes

____ Syncope (fainting) or blackouts

____ Sensation that you might faint

____ Vertigo or dizziness

____ Numbness or tingling sensations

____ Tinnitus (ringing in one or both ears)

____ Photophobia (sensitivity to light)

____ Noise intolerance

EQUILIBRIUM/PERCEPTION

____ Feeling spatially disoriented

____ Dysequilibrium (balance difficulty)

____ Staggering gait (clumsy walking; bumping into things)

____ Dropping things frequently

____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)

____ “Not quite seeing” what you are looking at

SLEEP

____ Hypersomnia (excessive sleeping)

____ Sleep disturbance: unrefreshing or non-restorative sleep

____ Sleep disturbance: difficulty falling asleep

____ Sleep disturbance: difficulty staying asleep (frequent awakenings)

____ Sleep disturbance: vivid or disturbing dreams or nightmares

____ Altered sleep/wake schedule (alertness/energy best late at night)


COGNITIVE


____ Difficulty with simple calculations (e.g., balancing checkbook)

____ Word-finding difficulty

____ Saying the wrong word

____ Difficulty expressing ideas in words

____ Difficulty moving your mouth to speak

____ Slowed speech

____ Stuttering; stammering

____ Impaired ability to concentrate

____ Easily distracted during a task

____ Difficulty paying attention

____ Difficulty following a conversation when background noise is present

____ Losing your train of thought in the middle of a sentence

____ Difficulty putting tasks or things in proper sequence

____ Losing track in the middle of a task (remembering what to do next)

____ Difficulty with short-term memory

____ Difficulty with long-term memory

____ Forgetting how to do routine things

____ Difficulty understanding what you read

____ Switching left and right

____ Transposition (reversal) of numbers, words and/or letters when you speak

____ Transposition (reversal) of numbers, words and/or letters when you write

____ Difficulty remembering names of objects

____ Difficulty remembering names of people

____ Difficulty recognizing faces

____ Poor judgment

____ Difficulty making decision

____ Difficulty following simple written instructions

____ Difficulty following complicated written instructions

____ Difficulty following simple oral (spoken) instructions

____ Difficulty following complicated oral (spoken) instructions

____ Difficulty integrating information (putting ideas together to form a complete picture or concept)

____ Difficulty following directions while driving

____ Becoming lost in familiar locations when driving

____ Feeling too disoriented to drive

MOOD/EMOTIONS

____ Depressed mood

____ Suicidal thoughts

____ Suicide attempt(s)

____ Feeling worthless

____ Frequent crying

____ Feeling helpless and/or hopeless

____ Inability to enjoy previously enjoyed activities

____ Increased appetite

____ Decreased appetite

____ Anxiety or fear with no obvious cause

____ Panic attacks

____ Irritability; overreaction

____ Rage attacks: anger outbursts with little or no cause

____ Abrupt, unpredictable mood swings

____ Phobias (irrational fears)

____ Personality changes

OTHER

____ Rashes or sores

____ Eczema or psoriasis

____ Aphthous ulcers (canker sores)

____ Hair loss

____ Mitral valve prolapse

____ Cancer

____ Dental problems

____ Periodontal (gum) disease

© copyright 1999 and 2008 by Katrina H. Berne, Ph.D.,

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